Skip to main content

The P's and Q's of MS #WeAreStrongerThanMS

P is for politics. Yep. This is not my forte nor an active interest of mine, but when it comes to anything of importance there is always a political issue that must be  considered. Earlier this month in West Virginia, the legislature met to discuss relevant issues regarding multiple sclerosis. I had planned to go, but ended up sitting this one out. It was timely, though, with MS Awareness Month beginning. Although I no longer take any recommended MS drug, I do take two Ampyra tablets daily as a walking aid. I have a forty dollar monthly copay on a drug that would normally cost over two thousand dollars a month. Without our governmental support, prescription costs would make it impossible for us to afford the medical treatment we need. So, we need to be interested in how politics affect our MS, even if it is a nasty business.

I have been fortunate with my MS prescription costs due to a (pre-retirement) insurance plan, but I am terrified for those Warriors without the means to obtain necessary treatments; Mainly because it is not always the meds that do the best work toward fighting our symptoms and relieving the pain

Massage is an awesome alternative that is not covered 100% by insurance, but as with exercise classes and physical therapy, it is not considered important enough to be covered by my insurance. 'Tis a shame since these are things that REALLY help me get over the rough spots with MS. And, while congress is hashing over the elements of medical insurance, they need to be aware of these things. So, yeah, it is necessary to be politically aware.

I am not telling you to become a hair burning activist, but the more we reveal the realities of MS treatment, the more awareness will be publicized. I hope.

So...P is also for publicity, which is what MS Awareness Month is all about. I am grateful for this month designated to publicize our cause, but we should draw attention to MS all year long. MS is often a silent disease. Let's make some noise. 

Earlier this month that is exactly what I did with the help of our local news team at WBOY and our county self-help group. Hope we did you proud.

Since I did not see this on TV myself and my computer speakers are on vacation, I actually have not viewed this, so criticize all you want. 😉I will never know...

In May I will continue my crusade with a public reading at Morgantown Public Library in Morgantown , West Virginia. I wrote I Have MS. What's Your Super Power? fourteen years after my diagnosis. It took that long to wrap my brain around my situation and want to share my story with "my people". So, if you are in the area on May 17, I will see you at 6:30 and will read at 7:00. Sure, I am excited about maybe selling a few books to support my Ampyra habit, but the prospect of meeting other Warriors and discussing MS is even more thrilling to me. Mark it down on your social calendar. I will see you there!

Since we are on the all important letter P, let me share this silly little activity I found on Face Book. It is really kinda cool. You just click on the link and follow the directions to post an awesome portrait of yourself. So P is for post your picture. Celebrate yourself. When you do, share your work with the rest of us!

For the letter P, also mind your Q's as well. Question, question, question. We will not receive answers until we pose the question. Although  I trust medical science, I have learned to trust my gut maybe a bit more. Our bodies talk to us if we listen.

Q is also for quiet time. For reflection, for knitting, for reading, for meditation, or for prayer: This is so important. We owe it to ourselves to spend some quiet time to just breathe. After you busy yourself making noise about the MonSter for the public, balance that with quiet  time for yourself.

Love and Light,
Post a Comment

Popular posts from this blog

MS Awareness Month: And the winner is...

MS Awareness month may be officially over according to the calendar, but I a still learning. You know that weird electrical buzz that runs up the spine and into the brain when you move a certain way? It has a name!

L'Hermitte's can be painful, but it is usually a momentary condition. Read more:
Another name that requires attention is the winner of my I Have MS. What's Your super Power? give away.Drum roll please......Megan Lewellyn! You have just won yourself a signed copy of this international award winning common sense guide to living with multiple sclerosis. Please message or e-mail me with your address so that I can gt that right out to ya. Because I follow your work, I know that you know something about this disease, but we can never know enough. Right? Congrats. I look forward to hearing from you.
Starting today, with every additional 25 followers to this site, I …

MS Awareness Month: The Letter K

K is for keeping up with Jones's. 
Get rid of this philosophy RIGHT NOW. You are special. You are unique. You are a Warrior. You are a Super Star. MS does not define you. 

We have enough on our plates without worrying about without the rest of the coming and goings in our neighborhood, church, community, family. So what if Bubba got a new ski boat or Nibby Neighbor Nancy is planning - loudly - her spring cruise. I celebrate daily getting out of bed. No, I am not downplaying the excitement surrounding these happy moments in the lives of those folks we know. As MS Warriors, we sometimes need to remember that life hold more bonuses than money can buy.

This morning I am reminded that spring is on its way. Sure, I saw the news and I am well aware of the snow storm that promises to pelt our country in a few hours. I am ready. Milk in the fridge. Bread in the pantry. Flashlights battered up. But, behind that storm is spring and my favorite scent of all times: lilac. Don't ya just love t…

Last Day of MS Awareness Month