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Showing posts from March, 2017

Last Day of MS Awareness Month

WBOY gets involved in MS Awareness Month

Have you ever wished to be famous? To be easily identifiable in public? For that moment when a complete stranger points a finger you way and says, "Hey, I know her. I know you!"


The first time an announcement was heard that I had "entered the building" was from a a cute little third grader in my current Read Aloud classroom. As soon as I walked into the room, the excitement grew. 

""Hey, guys, look! Our readers if here and it's the lady with the cane!"

Yes, my colorful walking sticks do make quite the impression and have, in fact, become my trademark. Twice a month I volunteer to read to a local third grade class as part of our state's Read Aloud program. https://readaloudwestvirginia.org/ I am so grateful for this opportunity to stay connected with a classroom since my unplanned early retirement. So, this is a win-win for the classroom teacher and me. 

Ironically the class I was assigned is the same group of youngsters that I addressed last year…

#MSWarrior #DoNotGiveUp #WeAreStrongerThanMS

Social Media has done so many wonderful things for us  humans in need of ways to communicate across the country and the world. Until only recently I would not (more accurately, could not) turn on a computer and now this is what I do every single day. There is so much information out there and it is literally right at your finger tips.

With information, there is knowledge. Knowledge is good. Unfortunately, with knowledge there is also danger. We must learn to sort through the good knowledge and the bad information.

With my son's recent diagnosis of mononucleosis, he has spent time investigating his condition in an attempt to recover as quickly as possible.  The more he reads, the further into a funk he sinks. His biggest concern is for the health of his spleen. Go ahead and laugh. We, too, have had  few good giggles over the issue. But, really, thinking back to my teen years, this truly would be a huge concern. The unknown. 

Although mono is pretty much a life-sentence, things could b…

#WeAreStrongerThanMS: MS Myths and Facts

Oh, whoa is me...My alphabet has run its' course and now you are left with a bunch of unorganized gibberish that may actually make sense; Much like the disease that inhabits our body.

There are so many pseudo facts about multiple sclerosis floating around out there that we could challenge el-president Trump on his quest to eliminate all those fake truths  he is always harping (oops...tweeting) about.






Multiple Sclerosis Treatment Multiple sclerosis (MS) is an autoimmune disease resulting from the body’s immune system essentially attacks myelin, the fatty substance that insulates the spinal cord, optic nerve, and the nerve fibers of the brain. Without this valuable insulation, nerves become damaged and scar tissue can form. The nerves of the body can no longer function as they are supposed to. This degenerative illness can result in loss of muscle control, fatigue, problems with memory and focus, vision problems, balance issues, numbness, tingling, pain, and trouble with basic body…

Z is for zzzzz's. MS Awareness Month #WeAreStrongerThanMS

Z is for zzzzz's.


Sleep is important in anyone's life. Years ago, doctors prescribed plenty of rest for folks exhibiting symptoms of MS. Do not exercise. Remain stationary. Basically relent to your illness and be a forever slug.

Blah! Phooey! 

Sure, know when to apply the brakes on physical activity, but never stop moving. 

Sleep is another issue, though. I prefer the standard eight hours, but can work well with my usual six to  seven. I am an early rise, though, so my energy is usually zapped by mid afternoon. I know that and I try to schedule the less strenuous (physical and mental) portions of my day around that. 

Fortunately, when I lay my head at the end of the day I am good until the morning alarm; but many folks do not have that luxury. I read more and more about fellow warriors struggling to get their eight (or any) hours. This disrupted sleep can reek absolute havoc on an attempt at normalcy. Several causes of sleep disruption an be controlled without medical assistance. 

I…

Y is for yoga. #WeAreStrongerThanMS

Y is for yoga. The BEST treatment I have discovered. Restorative yoga is awesome. It doesn't require a lot of physical exertion and isn't really an expensive activity. You just need a floor, a rug or yoga mat, some loose clothes, and your breath.                  

My biggest issue with yoga, or any other exercise program, is taking the time to do it. Sometimes the couch screams my  when Al Roker reports the weather or Live With Kelly comes on. After watching so many recorded yoga routines, I can usually practice while watching TV. It just depends on my level of motivation.

I know I should practice yoga, or some type of stretching every day. Of course the painful reminder hits me when I have ignored my own advice for several days and am met with a pronounced drop foot and an inability to use my right leg more than usual. Then I feel like such a slug; rightly so. So, learn a pose and try it...just for a few minutes a day...you'll be amazed.

https://www.doyouyoga.com/the-10-most…

X is for MRI MS Awareness Month #WeAreStrongerThanMS

is for MRI's. Okay, maybe I stretched the alphabet game a bit, but isn't an MRI an x-ray? 

Duh. This may not be a whole lot of fun, but it is a necessary part of living with multiple sclerosis. 

For those of salivating with the need to appear more in-the-know  when referring to this procedure, MRI  is a magnetic resonance imaging scan that is a highly sensitive, yet non-invasive,  method of viewing internal damage to the body. es, it is an x-ray.




Of course, this image is deceiving in it's sense of peaceful environment. There is no soft relaxing music canned in, there are no soothing candles lighting the dark corner of the room, and there is not a yogi standing by to send you positive waves of energy.

This is basically a cold, antiseptic (hopefully) hospital space of blue dye injections and jack hammer distraction.

You know all about it. If not, let me give a personal tour.

MRI's have come  along way over the years. Modern MRI vessels often offer side windows which help (supp…