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Wednesday, February 15, 2017

What NOT to say to a person with MS


What it's like to have a chronic illness:


It has happened to you. You know it. Maybe you are guilty of the same thing; empathizing with someone else's pain.

It's a common reaction and one that all humans program as a response to another's complaint.

That doesn't make it any better, though.

Maybe it is because this morning I am plagued with chills, have a killer ear ache, and just do not feel well, my patience with folks who insist on attempting to be in my shoes is at a low. My immediate ailments are NOT due to MS, but (unfortunately) the multiple sclerosis tends to magnify any physical (or mental/emotional) interruption in daily living; so, YES, I probably feel worse than the normal person. Interestingly enough, though, with my current physical state, my walking gait is rather impressive today. Funny how the body compensates.

So, I plan to blunder through my day with as much bravado as I can muster. Today is bowling day and my day with Mom. So, I must overcome, breathe the other way, and push through this thing. That ids what we Warriors do, right? Today I will sucker punch MS and try to bowl above my average. For most people that wouldn't be too difficult since my average is very low. Like 30's? I did have a 75 game last week (Don't know how that happened.), so there is hope.

So, to those folks who doubt that I am sick, or that I do not get enough exercise, or that you know how I feel, I am dragging my "don't look sick" body into today. And I will enjoy it.

If you don't commiserate with me, I will return the favor.

Cheers,
Lisa




https://multiplesclerosis.net/infographic/things-not-to-say-to-ms-people/?utm_source=facebook.com&utm_medium=promoted&utm_campaign=MS

  • You don’t look sick
  • You shouldn’t drink diet coke
  • OMG this diet cures MS
  • OMG this vitamin will leave you symptom free
  • Aren’t you gluten free? … You should be
  • Aren’t you too healthy looking to have MS
  • Try this herb; it helped my cousin’s uncles’ sister’s friend who has MS
  • Well aren’t you taking your meds?? (Yes….) Then why is your MS bothering you still?
  • Are you contagious?
  • You shouldn’t eat meat…
  • What did you do to get MS?
  • How DID you get that? You must’ve had mono
  • If the heat bothers you, don’t be in it… or move…
  • I heard a vaccine caused it
  • Can’t you just walk slower?
  • Why are you dragging one of your feet?
  • Why are you always so tired? It can’t be that bad…
  • Well if you’re in remission, why are you on meds?
  • If pregnancy makes it better, why don’t you just keep having more kids!
  • That celebrity with MS seems just fine, why aren’t you?
  • Do you take enough vitamins?
    Are you sure it’s MS…? How can doctors be so sure?
  • Stop using MS as an excuse… you can’t feel that way ALL the time.
  • Maybe you just need to try a little harder.
  • Why don’t you try a different medication, that doesn’t cause so many side effects?
  • You seemed fine the other day…
  • You slept ALL night, how can you be so tired?
  • (This is for the younger MS’ers) WOW… you take more medicine than my grandma…
  • MS… isn’t that the muscle illness? (No. That’s MD = Muscular Dystrophy)
  • You daydream a lot in the middle of a conversation, that’s rude! (No… it’s cognitive issues)
  • Why do you keep forgetting things?
  • Oh TRUST me… I know exactly how you feel!
  • Oh, you should just exercise more…
  • It really can’t be that bad…
Oh… and when they compare how they feel or have felt in the past, with your symptoms… like it’s the EXACT same feeling…


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