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Friday, April 29, 2016

QUESTION: Is a MS relapse the result of a new lesion? Can you actually feel it happening?




 









I just need to clear the air and get this off my chest. Because I have felt totally lousy for the past 48 hours, new MonSter questions have developed in my mind; and, me being me,  I decided to perform an informal search for answers; which turned out to be that proverbial needle in a haystack.

Prior to and during my relapse several things happened that I just knew had something to do with the formation of new lesions. I could not bend or curl the toes on my foot affected with foot drop. I had no fine motor skill dexterity in my right hand. I experienced several severe muscle cramps in my legs and feet. That should be easy enough to research, right?

Bwwa-ha-ha!

Yes, dear friends, that exacerbation was more powerful than I thought. It totally wiped out all rational thought. I momentarily forgot the identity of the beast with which I was dealing. Score 1 MS.

Anyway, my research took me to a website full of promise...if only I could finalize registration in order to discuss my questions in an open forum. 

You know those funny little identity confirmation puzzles that must be addressed in order to gain access into internet sites? Y'know the ones. The objective is to reproduce a shown image by typing in the exact message. 

Hey, guys! I HAVE MS. I CANNOT READ SOMETHING THAT IS THE SIZE OF A PENCIL LEAD OR SHROUDED IN FOG.

Even without MS this would be an aggravating challenge. In fact, let's just eliminate the existence of MS (Wouldn't that be great?) all together and try this exercise with perfect vision. IT IS NOT HAPPENING.

So, MSWorldOrg, I apologize for throwing you under the bus, but attempting to navigate your site only served to add further anxiety to my anxiety-overloaded state of mind.  I will continue my research via human interaction of my own.

QUESTION:  Is a relapse the result of a new lesion? Can you actually feel it happening?

Also, does a separate physical condition evolve as a result of that exacerbation?

Cause, guess what?

I have a head cold now. I can currently bend my toes and my walking gait has restored itself to acceptable. My fine motor skills have returned. Life is good, right?

Except my head is full of phlegm, my nose is dripping, and  I now have an annoying cough. Did this seasonal condition initiate my exacerbation or is it the other way around?

Even though the MonSter might think it is winning this challenge, it is so, so wrong.

You see, that moment of weakness in allowing it to score also opened up a fresh arsenal of questions that I will fight to resolve. 

Have a wonderful lesion-free weekend,
Lisa



Thursday, April 28, 2016

Wednesday was a horrible, terrible, really bad day.





                                      



Do you remember that classic children's story about Alexander and his terrible, horrible, no good, very bad day?

That was my Wednesday.

It all began with my computer crashing, forcing me to contact Window support for a two hour phone call marathon. I had to make a judgement call on skipping my exercise class in order to deal with said computer. So, I opted for a little at home yoga and stretching between phone calls.

All hunky-dory and ready for my shower, I was aware of strange little electric brain sensations. Those strange sensations followed me to the shower and practically forced me to my knees. That was semi-okay until I realized that the right side of my body was taking the day off, making my slippery exit from the tub rather challenging. I wanted to laugh because laughter always makes me feel better.

This was no laughing matter, though.

So I cried instead. I cried while I struggled to towel dry. I cried while fighting to get both feet/lets into my undies and jeans. I cried when the comb stuck in my wet hair, so I just let it hang there. I cried when my cat pranced to my side in an act of what I hoped was concern and not narcissistic need.

I cried when I could not make my fingers work the TV remote. I cried myself into a restless nap on the couch which is where my son found me hours later. 

I cried some more upon realizing that I could NOT even the bread for a cheap supper of grilled cheese; and I cried when I scuttled off to my room to hide my tears and assure the fellows that I was not hungry. A few crackers for me would suffice.

The crying didn't stop until I readied for a little pre-sleep reading. Thanks to author friend, Danielle DeVor for supplying me with enough exorcism imagery to caste out further thoughts of MS exacerbation. I didn't cry again until this morning when I elected to use the express check out at Walmart and promptly began dropping food items on the floor. Shopping before 7AM has its advantages. there weren't too my witnesses to my situation. I was just another early morning Walmart photo op.

Things are looking up, though. After cancelling my Mom/
Daughter afternoon and ditching yoga class, I plan to take things slow in hopes that this, too, will pass before the weekend rolls around. My son has BIG things to do this weekend and he doesn't need to worry about his mother  getting arrested for public intoxication without benefit of  a heightened alcohol level.

At this time, I am left with traces of what I experienced yesterday, but I am determined to overcome it. Of course this leads to me to question what could possibly have triggered this relapse. There has been no undue stress in my life. The temps are cool and pleasant. I am getting an adequate amount of sleep.

I DO have a distinct tightness in my chest that makes me believe that there is a chest cold waiting to break open. (Sorry about the graphic wordage.) 

Because I am totally at odds with my fine motor skills today, I find it impossible to indulge in plagiarist behavior, so you need to click on the following link for follow up FACTUAL information on the immune system and MS. there is also a nifty visual to go along with the article.

http://www.healthline.com/health/multiple-sclerosis/effects-on-the-body

For now, this Warrior is signing off to go sulk for a while. I earned it.

Lisa
 
Content created by Healthline and sponsored by our partners. For more details click here.

Multiple Sclerosis
From TOP to BOTTOM
Getting the Complete Picture

Multiple Sclerosis is a neurodegenerative and inflammatory immune condition that causes problems throughout the body. Pinpoint the disease’s effects from head to toe.
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MS on the Brain
MS 
on theTongue
Arm Wrestling with MS
Immunity and MS
MS on the Bladder & Bowels
Getting a Leg Up
Visions of MS
Getting a Pulse on MS
Breathing it in
MS and the Reproductive System
MS 
Bone by Bone
MS: 
A Joint Venture

The Effects of MS on the Body Systems

Multiple sclerosis (MS) is thought to be an autoimmune disease and progressive neurodegenerative condition. It affects the nervous system, which gradually impacts the whole body. The Multiple Sclerosis Foundation (MSF) reports that as many as half a million people in the United States have been diagnosed with MS, and hundreds more diagnoses are made every week (MSF, 2009). Women are diagnosed with MS at least twice as often as men—usually between the ages of 20 and 50—according to the National MS Society (NMSS).
The exact cause of MS is unknown, and there is currently no cure. However, there are many treatments available that can slow the disease’s progression or ease its symptoms. Although everyone’s experience with MS is different, there are common symptoms that occur throughout the body for many individuals.

The Nervous System

When someone has MS, their body’s immune system slowly attacks its own myelin sheath, which is composed of the cells that surround and protect the nervous system including the spinal cord and brain. When these cells are damaged, the nerves are exposed, and the brain has difficulty sending signals to the rest of the body.
The disconnection between the brain and the organs, muscles, tissues, and cells served by the damaged nerves causes many of the classic MS symptoms, such as dizziness, vertigo, confusion, memory problems, and emotional or personality changes. Depression and other changes in the brain can be a direct result of MS or an indirect result from the difficulty of coping with the condition.
In rare or advanced cases, nerve damage can cause tremors, seizures, and cognitive problems that closely resemble other neurodegenerative conditions such as dementia.

Vision and Hearing

Vision problems are often the first sign that something is wrong for many people with MS. Double vision, blurriness, pain, and problems seeing contrast can begin suddenly and affect one or both eyes. In many cases, vision problems are temporary or self-limiting, and likely result from nerve inflammation or fatigue of the eye muscles.
Although some people with MS experience permanent vision problems, most cases are mild and can be effectively treated with steroids and other short-term treatments.
Although it’s rare, people with MS may experience hearing loss or deafness. These types of hearing problems usually resolve on their own, but can be permanent in some cases. Most hearing problems are due to damage to the brainstem. These conditions are so rarely caused by MS that patients should be evaluated for potential unrelatedcauses.

Speaking, Swallowing, and Breathing

According to NMSS, speech problems such as slurring, poor articulation, and volume control issues occur in up to 4 out of 10 individuals with MS (NMSS). They often occur during relapses or times of fatigue. Other speech problems can include changes in voice pitch or quality, nasality, and hoarseness or breathiness.
Speech problems can be caused by breathing difficulties that are brought on by weak or damaged nerves that control muscles in the chest. Difficulty controlling the muscles involved in breathing can begin early in the disease and worsen as MS progresses. This is a dangerous yet rare complication of MS that often can be improved through work with a respiratory therapist.
Swallowing problems are less common than speech difficulties, but can be far more serious. They may occur when nerve damage weakens muscles and hinders the body’s ability to control the muscles involved in swallowing. When proper swallowing is disrupted, food or drink can be inhaled into the lungs and may result in infections like aspiration pneumonia. Coughing and choking when eating and drinking can be signs of swallowing problems and should be evaluated immediately. Speech or language therapists can often help with trouble speaking and swallowing.

Arms and Legs

Many people with MS experience a wide variety of symptoms that affect their limbs. Damage to the myelin sheath often results in pain, tingling, and numbness of the arms and legs. Problems with hand-eye coordination, muscle weakness, balance, and gait may occur when the brain has trouble sending signals to the nerves and muscles.
These problems may start slowly and worsen as nerve damage progresses. Many people with MS first feel “pins and needles” and have difficulty with coordination or fine motor skills. As the condition worsens, limb control and ease of walking may become disrupted. In these cases, canes, wheelchairs, and other assistive technologies can aid in muscle control and strength.

The Skeletal Structure

People with MS are at higher risk of developing osteoporosis due to common MS treatments (steroids) and inactivity, according to NMSS (NMSS). Weakened bones can make individuals with MS susceptible to fractures and breaks. Although conditions like osteoporosis can be prevented or slowed through physical activity, diet, or supplementation, weak bones can make MS balance and coordination problems even riskier.
A growing body of evidence suggests that vitamin D deficiencies may play an important role in the development of MS. Although its exact impact on individuals with MS is not yet well understood, vitamin D is vital to skeletal health and immune system health (Zabad, 2010).

The Immune System

Most researchers and medical professionals believe that MS is an immune-mediated disease. This means that the body’s immune system attacks healthy nerve tissue, which results in nerve damage that affects the whole body. Immune system activity seems to result in the inflammation responsible for many MS symptoms. Some symptoms may flare up during an episode of immune system activity and resolve when the episode ends.
Some research is investigating whether suppressing the immune system with medication will slow the progress of MS. Other therapies try to target particular immune cells to prevent them from attacking the nerves. However, drugs that suppress the immune system may make patients more vulnerable to infection.
Some nutrient deficiencies may affect immune health and worsen MS symptoms. However, most MS physicians only recommend special diets when a specific nutrient deficiency is present.

Bladder and Bowel Function

Problems with bladder and bowel function commonly occur in MS. NMSS reports that at least 8 in 10 people with MS experience bladder dysfunction (NMSS). Bowel problems can include constipation, diarrhea, or loss of bowel control. In some cases, diet and physical therapy or self-care strategies can reduce the impact of these problems on daily life. Other times, medications or more intense intervention may be necessary.
The use of a catheter may occasionally be necessary. This is because nerve damage affects how much urine those with MS can comfortably hold in the bladder. This can result in a spastic bladder or urinary tract (UTIs), bladder, or kidney infections. These problems can make urination painful and very frequent, even overnight or when there is little urine in the bladder.
Most people can effectively manage bladder and bowel problems and avoid complications. However, serious infections or hygiene problems may arise if these problems are left untreated or unmanaged. Discuss any bladder or bowel issues and their treatment options with your doctor.

The Reproductive System

MS does not directly impact the reproductive system or fertility. In fact, many women find that pregnancy offers a nice reprieve from MS symptoms. However, NMSS reports that two to 4 in 10 women will experience a relapse during the postpartum period (NMSS).
Sexual dysfunction, such as difficulty experiencing arousal or orgasm, is common in people with MS. This can be caused by nerve damage or by MS-related emotional problems such as depression or low self-esteem. Fatigue, pain, and other MS symptoms can make sexual intimacy awkward or unappealing. However, in many cases, sexual problems can be addressed successfully through medication, over-the-counter aids (such as lubricant), or a bit of advanced planning.

The Circulatory System

Circulatory system problems are rarely caused by MS, although weak chest muscles can lead to shallow breathing and low oxygen supply. However, lack of activity due to depression, difficulty using muscles, and a preoccupation with treating other problems may prevent people with MS from focusing on the risk of cardiovascular disease.
A recent study found that women with MS have a significantly increased risk of cardiovascular problems such as heart attack, stroke, and heart failure (Jadidi et al., 2013). However, physical therapy and regular physical activity may help alleviate MS symptoms and reduce cardiovascular risk.

Primary Versus Secondary MS Symptoms

Most of the problems described above are primary symptoms associated with MS. This means that they’re directly caused by the nerve damage resulting from attacks to the myelin sheath. Some primary symptoms can be treated directly by trying to slow the nerve damage and prevent MS attacks.
However, once nerve damage exists, secondary symptoms can arise. Secondary MS symptoms are common complications of primary MS symptoms. Examples include UTIs that result from weak bladder muscles, or a loss of muscle tone that results from an inability to walk.
Secondary symptoms can often be treated effectively, but treating the source of the problem can prevent them altogether. As the disease progresses, MS will inevitably cause some secondary symptoms. Secondary symptoms can often be well-managed with medication, physical adaptation, therapy, and creativity. Depression, job loss, isolation, and relationship problems are often described as tertiary symptoms because they’re further removed from the actual course of the disease.

Treating MS from Head to Toe

While there’s no cure for multiple sclerosis, a wide variety of pharmaceutical treatments, herbal remedies, and dietary supplements help alleviate symptoms and modify the disease.

Disease-Modifying MS Treatments

Disease-modifying medications include:
  • teriflunomide (Aubagio)
  • interferon beta 1a (Avonex, Rebif)
  • interferon beta 1b (Betaseron, Extavia)
  • glatiramer acetate (Copaxone)
  • fingolimod (Gilenya)
  • mitoxantrone (Novantrone)
  • dimethyl fumerate (Tecfidera)
  • natalizumab (Tysabri)
Disease-modifying medications for MS often aim to prevent or reduce the severity of MS attacks, slow or prevent further nerve damage, and prevent further disability.

Physical and Alternative MS Treatments

No matter the stage of the disease, physical and non-medication therapies for MS can be very useful to treat symptoms. Popular therapies include:
  • physical therapy
  • occupational therapy
  • speech therapy
  • vocational rehabilitation
  • cognitive rehabilitation
In addition, many people with MS use alternative treatments in place of or in addition to pharmaceuticals and the therapies listed above. Alternative or complementary treatments could include herbal remedies, dietary supplements, and physical interventions.
Popular alternative MS treatments include:
  • bilberry leaf
  • ginger
  • vitamin D supplements
  • coenzyme Q10 supplements
  • massage
  • biofeedback
Although many alternative treatments for MS aren’t well researched, many people experience some relief with certain therapies. Always discuss with your doctor before using them to avoid medication interactions or complications with existing health problems.
Multiple sclerosis affects everyone differently: that is, you’ll experience a unique set of symptoms and respond to treatments individually. Therefore, you and your doctors should customize your treatment regimen to address your MS symptoms specifically and alter it as the disease progresses or relapses. A carefully designed treatment plan can help make MS a manageable condition.
- See more at: http://www.healthline.com/health/multiple-sclerosis/effects-on-the-body#sthash.JCuVU8XS.dpuf