So, I'm tardy today. I apologize.
I didn't expect to be late in posting this morning and , if you have been following this blog at all, you know that I am invested in posting 31 blogs for the 31 days of MS Awareness Month.
I didn't plan to be tardy today. But, I didn't plan to have a life altering disease. And I didn't plan for my son's little bout with allergies to turn into a suspicious flu to sharing qualities with strep throat to keeping him home from school for three days only to find out that he is suffering from a "viral crud" (exact words from the mouth of his pediatrician) that is going around.
There is nothing that can be done to alleviate his physical discomfort other than time at home, drinking plenty of fluids and trying to keep something in his stomach.
I could moan and groan about my ruined plans for attending exercise class or going to the mall or getting some much needed writing accomplished. That wouldn't do me or anyone else any good. His sickness wasn't planned. Trust me. He is not enjoying this any more than I. He is a young mean with a mission and that mission doesn't include hanging out with Mom when he could be hanging out in the school computer lab working on the video component that will change the world. You see; that is his plan. To change the world one computer program at a time.
In the concept of planning, not only do we plan our illnesses, we also do not plan or rehearse our reaction to such things.
"I know conversing with someone with a disability (invisible or not) makes some people uncomfortable. What does on e say? What does one suggest? My advice is when in doubt, do't mention MS. It doesn't have to be the focus of social conversation. In fact, I would rather it not be approached at all. I am not embarrassed by my condition (anymore), but I am truly embarrassed for those who feel they must address my health.
We all have (or soon will have) our own list of the most ridiculous/embarrassing MS-related comments. Here are some of mine:
You still have that (MS)?
When did you catch that disease?
You must really have it bad if you're still taking drugs.
Aren't you afraid your son will catch MS from you?
Oh, you've got one of those alphabet diseases. I can never keep them straight.
Didn't Lou Gehrig die fro multiple sclerosis
Why are you walking with a cane? (This from the same person who asks every time he sees me.)
Oh, you probably wouldn't want to come (to whatever social event is being discussed). We'll be out late.
I thought you would outgrow it.
My neighbor had MS He died last week."
p. 27 I Have MS. What's Your Super Power?
I try my darnedest to avoid health-related conversations; but since MS is always with me and always on my mind, my world pretty much revolves around the MonSter.
I do not expect other folks to understand. I also do not plan my social events around MS.
"...I still have MS. I plan to take it to the grave with me, but I do not plan to go to the grave because of it."
I did not plan to be late in posting this morning. I did not plan for my son to have a "viral crud" today. I did not plan the topic of this post.
The point of this is that those of us with MS must always plan to expect the unexpected. Deal with it, folks. It is what it is.
Look for me on my FB page Lisa A. McCombs or my writing FB page Abby.