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Showing posts from March, 2016

The Personal and Public Politics of Multiple Sclerosis

I am NOT a political person. I do not debate government 

issues or worry my already foggy brain with details that only 

serve to further confuse me. I just want to live peacefully in 

my own little world where disease, terrorism, and crime do 

not exist. Stick a lollipop in my hand and read me a bedtime 


Well, that's not possible and  I have had to come to terms 

with this reality. People get sick. Bad men hurt innocent 

victims and politicians rob us blind. It is what it is.

Until my retirement in June, I enjoyed what I felt was a 

wonderful insurance plan. In West Virginia, public employees 

are covered by PEIA. My coverage was 

directly taken from my monthly paycheck and I had very few 

problems with plan payment and medical bills. That was not 

the issue upon retirement. All of the sudden my co-pays and 

plan coverage nearly doubled. I could no longer afford 

PEIA. My plan is a

One Warrior's MS Campaign

EATURED Monongah woman continues campaign to support multiple sclerosis researchBy Kelsie VanderWijst Times West Virginian9 hrs ago PHOTO BY KELSIE VANDERWIJST Lisa McCombs was diagnosed with multiple sclerosis in 2001. Since her diagnosis, McCombs has published multiple books about the disease. 0

Don't be concerned, it's just MS relapse. And it's a long one!

"Oh, I know what you're going through. Been there, done that."
"Have you tried taking a daily aspirin?"
"Well, maybe if you get more exercise you could get around better."
"Don't be so dramatic. You're taking medication for it."
"I'm sorry you feel so poorly. At least you know this is temporary."
Do any of these comments sound familiar? Even when we go out of our way to explain the "flair ups' that accompany   multiple sclerosis, these debilitating symptoms cannot be adequately described.

By definition, a relapse is the appearance of new symptoms or the aggravation of old ones. A relapse usually lasts 24 hours or longer; sometimes even for weeks. A relapse is caused by inflammation in the bran or spinal cord. A relapse is actually the outward sign(s) of disease activity and the episode needs to last for at lest a day to be considered an actual exacerbation. Symptoms that occur and are not related directly to MS are r…