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Showing posts from February, 2016

Today's Yoga On the Go

Early morning at my house is the most peaceful portion of my day. It is the perfect time to practice stretching and limbering in hopes that today I will walk without hesitation. Today I will not fall for no visible reason. Today I will motivate myself from point one to all points in between with a little memory of that graceful gait I once entertained.

And today I am going to find out if Amprya is really the walking solution to my MS that I hope it is.

I know, I know...I swore to stay away from MS prescription drugs and to go it on my own. I would be seriously remiss, though, if I didn't follow my own rantings and give it a try. From my research I cannot find any extreme dangers with Amprya. The possibility of seizure activity seems to be the number one side effect and it is a long shot. I just want to walk with some semblance of normalcy. I'll give it a try if my neurologist says I qualify.

So, I've had my yoga session with the very handsome Kurt (I think that's his n…

Two Days until Multiple Sclerosis Awareness Month 2016

From the look of things, several folks have actually viewed my BIG ANNOUNCEMENT and are aware of my little fund raiser. Thank you so much for reading my post. Tell your friends. Bribe your children. Threaten you neighbors. Help me make this a worthwhile campaign.
Multiple Sclerosis is a condition in which our own body attacks and destroys the healthy cells and tissues, creating a myriad of symptoms and problems for our neurological health. Because we are all different, our reaction to this internal attack differs as well. Before totally freaking out over the possibility or reality that you have multiple sclerosis, you must realize a few truths about MS.
 MS is NOT. MS cannot kill you, but it can offer health challenges that may lead to death. Multiple Sclerosis is not curable, but it is not fatal either. So, do into get sucked up in the drama associated with having a chronic or incurable disease. This creates stress and stress is one of the leading igniters of MS relapse. 
But, being …

MS Awareness month

I do not do a lot of donating. Hey, I'm a retired school teacher. I didn't make much when in the work field, and this retirement business isn't any better financially. Living with a chronic disease is an additional financial burden. But I'm loving life and doing something I always dreamed abouth: writing

My goal for the month of March is to contribute a substantial portion of my book sales to the National Multiple Sclerosis Society. I would love to just hand over my royalties in their entirety, but those bills mock me from their perch on the corner of my desk. I am excited to donate a dollar of each book sale to http://www.nationalmssociety.org/
Why are my books of interest to anyone fighting the MonSter?

You must not have read one if you are asking this question.

Speaking of questions...Do you ever wonder how the children in your life deal with your MS? Well, meet Abigail Van Buren Masterson, the alter ego who emerged after my diagnosis. Watching the reactions of my …

MS Life from My Perspective

As I view my kitchen floor I realize that it's very different from that of the bathroom. Both constructed of ceramic tile, I offer silent appreciation to the previous owner of my cozy home. He did a wonderful job of installing the floors in the two main rooms of the house. While the bathroom floor is white, the kitchen tile is a gorgeous hunter green, which is perfect for the French wine country theme that I have developed since purchasing the home. I am proud of my kitchen design: stainless steel appliances, wine colored paint on the walls, new granite design counter tops, and this beautiful dark green ceramic that I accented with two complimentary area rugs. No, I am not a designer nor can I lay claim to the Martha Stewart Movement of crafting the perfect home staging.

I'm just on the floor again.

At least this time it was an easy fall. More like I just kinda folded to the ground. Sometimes I don't even realize I am falling until some body part has made contact with sol…

The Roller Coaster Ride of MS Medications

July 2001 is when I became a druggie. That is the summer I fell (literally) into the collective pool of drug users. And I did it big time. Go big or go home, right? I went straight for the needle. Beta Seron was my drug of choice. I learned the proper way to self-inject and NEVER shared needles with anyone. Of course, at the time I didn't know anyone else who took medication for multiple sclerosis and was just learning about my own personal alphabet disease. You know the ones: MS, MD, ADHD, the letters for Lou Gehrig disease... The needle sharing thing was not really a possibility as Biogen assured that the user's equipment was and is for singular use only.

At first the injections were not a whole lot of fun. it's not that I have an aversion to needles; scheduling the treatment is just not convenient. And, sure, needles are not that much fun. But I had to keep a positive attitude and I found pleasure in the little things. Like when the auto injector was introduced and I n…

Let It Go

Yep, the theme of my rant today is a popular animated movie title; but the words sum up my thoughts precisely. I've not had a great couple of days. I'm light headed. My muscles are atrophied and I just don't feel right. I have even allowed myself to succumb to senseless crying spells (alone of course). I do not like this. My  husband wants so badly to help and that he can "see it in my eyes". Since the eyes are supposedly the windows to the soul, I feel like it might be wise to wear dark shades in public so that my pain is hidden from view. I just do not like sharing my personal "stuff" with other folks.

Especially the skeptics. Y'know: those poor ignorant folks who insist on proclaiming that MS is a catch-all term for abusers of the "system".

Ah... don't get me started. It would take too much out of me on this, the first day I have felt like doing anything in a week. I plan to "let it go" and find something productive to cha…