Skip to main content

My MS. Is it age or is it MS?

Not long ago, a colleague of mine suggested that it would be great for me to write about my relationship with multiple sclerosis. At first I thought that was a silly idea. Who wants to read about someone else's disease? Since then I have had the privilege of reading several personal experiences with life altering conditions and have found them extremely interesting, inspiring and helpful. So, here is my first installment in what I plan to write here over the summer. We'll see if it draws a crowd or if it simply serves to help me vent:)
*********************************************************************************
    So... this morning I woke up with heavy, dark pouches under my eyes. I went to bed before 11 PM, I was not partying, I did my daily exercise and even added an extra ten minutes of yoga. I've been a good girl lately. Low fat diet (okay, I did put cheese on my burger last night...but I did not snack). My weight is below 130 and my BMI averages at 22. Not bad for a 53 year old.
     But I look in the mirror and I see...a 53 year old woman with bruises under her eyes and an aching jaw from fiercely grinding my teeth all night.
     So...is this my age or is it my MS?
     Because this is my MS.
     Multiple Sclerosis is a customized disease. Every victim is unique.  Symptoms might be similar but reactions vary.  I have decided that our attitude towards our disease is most likely the MOST IMPORTANT ingredient to living with the mystery of MS.
     What is the difference between aging and MS?
     Our bodies progress with age. Our memories diminish, vision becomes skewed, hearing dims, flexibility stiffens, and reaction time lengthens.
      MS has dominated and defined these changes in my body since my diagnosis in 2001.
******************************************************
I promise I will write more tomorrow. I am actually rather excited to talk about My MS.

If you are interested in reading more about dealing with MS from a teen age point of view, check out my YA series on Amazon.com. Titles: Abby, Raspberry Beret, and Opening Pandora's Box.
     
Post a Comment

Popular posts from this blog

Aubagio and multiple sclerosis

AUBAGIO...What do you know about it?

Am excited that my little county n West Virginia is actually hosting an educational event relative to my purpose this month. Although I have pretty much sworn off prescribed meds for the treatment of MS, I am still interested in continued education about the MS world. Guess that's the teacher coming out in me.

So, tomorrow evening (6:15) I will be attending an informational event hosted by Muriale's Restaurant in Fairmont, WV. Dr. Mark Hospodar will be speaking to the use and effects of Aubagio, an oral MS treatment now on the market.  I know nothing about Aubagio and am anxious to hear what this neurologist has to say. My hone and only experience with oral medication was a night mare, although I am familiar with the success of Tectfidera for many MS Warriors. Not here to  bash any treatment, but to learn more.

As I mentioned before, I am not entertaining a future treatment of chemically enhance pharmaceuticals, but feel I need to know as much…

Aubagio Followup

WOW!

Last evening I attended an area meeting to learn more about Aubagio, one of the three oral MS medications on the market. General MS physician Mark Hospodar provided the informational portion of the session, complete with a slide presentation full of facts about multiple sclerosis. It was very basic and mostly repetitive for those pro-active MS sponges. Not mind-blowing stuff, but pretty heavy on the importance of medicating upon diagnosis.
Enough to convince me to take a closer look at my own choice to remain MS drug free.

It was an intimate group of approximately a dozen women plus the doctor. Very relaxed, informal, and free of judgement. We were all there for the same reason with the same goal in mind: to discover the "wonder" drug, or at least something closer to a promised remedy. (In addition to the fantastic Italian cuisine at Muriale's Restaurant. Yum!:)

We heard from Aubagio veteran, Renee, who told her journey with her initial diagnosis s well as her life with …

Non-resolution resolutions. #MyMS

I have never like purple, of any shade. Until now.

Lilacs and lavenders have become my go-to hues. My bathroom is encased in lavenders and sage greens. My kitchen was transformed into a Parisian inspired wine room of every grape infused color from the California wine country of  hills of Temeculah to the Italian vineyards of Tuscany.

I infuse lavender essential oils throughout the main floor of my home to instill calm and feelings of good will. I even tried my hand at growing lavender plants last spring. No luck with the outside plants, but my indoor pots overflowed with lavender for several weeks. With any luck my next exterior harvest will take over the front lawn to serve as my gardening attempt for 2018. Not wildly enthusiastic at the art of green thumb activity, my hope is that lavender growing will be as tranquil as the plant it represents.

During my holiday binge watching of Gray's Anatomy, I noticed something extremely appealing in an episode when Izzie was hospitalized. Yes,…