Skip to main content

My MS. Is it age or is it MS?

Not long ago, a colleague of mine suggested that it would be great for me to write about my relationship with multiple sclerosis. At first I thought that was a silly idea. Who wants to read about someone else's disease? Since then I have had the privilege of reading several personal experiences with life altering conditions and have found them extremely interesting, inspiring and helpful. So, here is my first installment in what I plan to write here over the summer. We'll see if it draws a crowd or if it simply serves to help me vent:)
*********************************************************************************
    So... this morning I woke up with heavy, dark pouches under my eyes. I went to bed before 11 PM, I was not partying, I did my daily exercise and even added an extra ten minutes of yoga. I've been a good girl lately. Low fat diet (okay, I did put cheese on my burger last night...but I did not snack). My weight is below 130 and my BMI averages at 22. Not bad for a 53 year old.
     But I look in the mirror and I see...a 53 year old woman with bruises under her eyes and an aching jaw from fiercely grinding my teeth all night.
     So...is this my age or is it my MS?
     Because this is my MS.
     Multiple Sclerosis is a customized disease. Every victim is unique.  Symptoms might be similar but reactions vary.  I have decided that our attitude towards our disease is most likely the MOST IMPORTANT ingredient to living with the mystery of MS.
     What is the difference between aging and MS?
     Our bodies progress with age. Our memories diminish, vision becomes skewed, hearing dims, flexibility stiffens, and reaction time lengthens.
      MS has dominated and defined these changes in my body since my diagnosis in 2001.
******************************************************
I promise I will write more tomorrow. I am actually rather excited to talk about My MS.

If you are interested in reading more about dealing with MS from a teen age point of view, check out my YA series on Amazon.com. Titles: Abby, Raspberry Beret, and Opening Pandora's Box.
     
Post a Comment

Popular posts from this blog

MS Awareness Month: The Letter K

K is for keeping up with Jones's. 
Get rid of this philosophy RIGHT NOW. You are special. You are unique. You are a Warrior. You are a Super Star. MS does not define you. 

We have enough on our plates without worrying about without the rest of the coming and goings in our neighborhood, church, community, family. So what if Bubba got a new ski boat or Nibby Neighbor Nancy is planning - loudly - her spring cruise. I celebrate daily getting out of bed. No, I am not downplaying the excitement surrounding these happy moments in the lives of those folks we know. As MS Warriors, we sometimes need to remember that life hold more bonuses than money can buy.

This morning I am reminded that spring is on its way. Sure, I saw the news and I am well aware of the snow storm that promises to pelt our country in a few hours. I am ready. Milk in the fridge. Bread in the pantry. Flashlights battered up. But, behind that storm is spring and my favorite scent of all times: lilac. Don't ya just love t…

The N of MS.

N is for not allowing MS to win. This easy. Refer to A-M and O-Z.

As MS Warriors it is our job, our responsibility, and our mission to provide information, support, insight, and understanding to this ridiculous disease. 

http://www.nationalmssociety.org/wearestrongerthanms

#WeAreStrongerThanMS

When I say we need to provide information, I am not just talking about clinical research and statistics. If you are living with MS or are close to someone with the MonSter, you have more information than can be found on the internet. YOU are the expert. YOU are the prime resource for what's what in this crazy land of MS. You experience(s) is invaluable.

Supporting the fight against MS wears many hats. Sure, you can make a monetary donation, but that is not always feasible in this tight-budget minded world. I am definitely preaching to the choir here. As a retired school teacher, I am facing quite a few unplanned expenses. No, money is not the only way, or necessarily the best way to offer assist…

This Writer's Euphoric Journey

It is November and that means National Novel Writing Month. I participate every year. As always, I am behind on my writing goal for the month: WRITE 50,000 WORDS  IN 30 DAYS. 

With only two days to go, I still need 10,000 to finish. 

So...I will see you here again on Wednesday or at the end of my journey of 50,000 words. Until then, breathe.

Lisa