With a forecast for rain and cool temperatures, many felt the 2018 Walk for MS might be a sloppy mess; but when I arrives in Morgantown, West Virginia, I found an optimistic, celebratory atmosphere that no storm could dampen. Clouds dispersed and skies cleared, knowing that the heavens could not compete with the storm happening on the ground at the Waterfront.
The true champions had arrived and their name was Warrior.
Tents were erected, tables arranged, team shirt distributed, books stacked, (I got to share I Have MS. What's Your super Power? !!!!)
acknowledgements made, participants in place, and the walk began,
with Team Tiffany in the lead. My new MS friend, Tiffany Albright, is an inspiration. she single-handedly recruited an amazing team of walkers that outnumbered any other congregation in attendance. Her numbers were amazing in monetary contributions and the enthusiasm of her teammates was more than inspiring.
Event though I did not personally join the walkers, my day was fu…
AUBAGIO...What do you know about it? Am excited that my little county n West Virginia is actually hosting an educational event relative to my purpose this month. Although I have pretty much sworn off prescribed meds for the treatment of MS, I am still interested in continued education about the MS world. Guess that's the teacher coming out in me.
So, tomorrow evening (6:15) I will be attending an informational event hosted by Muriale's Restaurant in Fairmont, WV. Dr. Mark Hospodar will be speaking to the use and effects of Aubagio, an oral MS treatment now on the market. I know nothing about Aubagio and am anxious to hear what this neurologist has to say. My hone and only experience with oral medication was a night mare, although I am familiar with the success of Tectfidera for many MS Warriors. Not here to bash any treatment, but to learn more.
As I mentioned before, I am not entertaining a future treatment of chemically enhance pharmaceuticals, but feel I need to know as much…
Last evening I attended an area meeting to learn more about Aubagio, one of the three oral MS medications on the market. General MS physician Mark Hospodar provided the informational portion of the session, complete with a slide presentation full of facts about multiple sclerosis. It was very basic and mostly repetitive for those pro-active MS sponges. Not mind-blowing stuff, but pretty heavy on the importance of medicating upon diagnosis. Enough to convince me to take a closer look at my own choice to remain MS drug free.
It was an intimate group of approximately a dozen women plus the doctor. Very relaxed, informal, and free of judgement. We were all there for the same reason with the same goal in mind: to discover the "wonder" drug, or at least something closer to a promised remedy. (In addition to the fantastic Italian cuisine at Muriale's Restaurant. Yum!:)
We heard from Aubagio veteran, Renee, who told her journey with her initial diagnosis s well as her life with …